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  Patient Recruitment - Lymphangioleiomyomatosis (LAM)
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Research Studies        
Lymphangioleiomyomatosis (LAM) and Tuberous Sclerosis Research Study   Lymphangioleiomyomatosis (LAM) Treatment Research Study

Lymphangioleiomyomatosis (LAM) Research Study

Lymphangioleiomyomatosis (LAM) and Tuberous Sclerosis Research Study

If you have been diagnosed with Lymphangioleiomyomatosis (or LAM) or with tuberous sclerosis complex (TSC), you may be eligible to participate in a research study at the NIH Clinical Center. The purpose of this research study is to improve our understanding of LAM and TSC. Eligible patients undergo a comprehensive pulmonary evaluation at the Clinical Center in Bethesda, MD.

There is no cost to you for travel or medical testing and, should you wish, information from your evaluation will be provided for your physicians.

For further information, please contact our research coordinator at toll free telephone: 1-877-NIH-LUNG (1-877-644-5864), extension 3, email: LungStudy@nhlbi.nih.gov.
 
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Protocol Information

Disease and Treatment Information
 

 

Lymphangioleiomyomatosis (LAM) Research Study

Lymphangioleiomyomatosis (LAM) Treatment Research Study

If you have been diagnosed with lymphangioleiomyomatosis and have developed fluid in the lungs (chylous effusions), you may be eligible to participate in our research study. If eligible, you will undergo a comprehensive pulmonary and medical evaluation at the Clinical Center in Bethesda, MD. The purpose of this study is to test the effectiveness of a medication called octreotide on symptoms and chylous effusions. Octreotide is a medicine, that in other studies was helpful in reducing chylous ascites, effusions and other disorders associated with lymphatic flow.

There is no cost to you for travel or medical testing, and should you wish, information from your evaluation will be provided for your physicians.

For further information, please contact our research coordinator at toll free telephone: 1-877-NIH-LUNG (1-877-644-5864),
extension 3, or e-mail:LungStudy@nhlbi.nih.gov
 
Email This Study To A Friend       View/Print PDF Version Of This Study

Protocol Information

Disease and Treatment Information
 

 
 
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