If you (or someone you know) is between the ages of 16-65 years and have been diagnosed with Diamond Blackfan anemia, you may be eligible for a stem cell transplantation procedure at the Clinical Center of the National Institutes of Health (NIH). Under evaluation is the use of low-dose radiation and novel methods of transplant preparation and post transplant therapy to reduce the risk of graft-versus-host disease.
You must have an HLA-matched family member to participate. We will do the blood testing free of charge to see if your family member is a match. We pay for all medical costs related to the transplant procedure. You must be available to live near NIH for approximately four months. We also provide a small daily allowance to help with living expenses while you are on the study and living away from home.
For more information please contact our research coordinator at (301) 402-3087, or email us at BloodStudy@nhlbi.nih.gov
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Department of Health
and Human Services
National
Institutes of Health
National Heart, Lung, and Blood
Institute